Today marks the 7-year mark of the day I have been officially diagnosed with Keratoconus!
Another Milestone!
Leave a reply
Author Archives: jwenzel
Today Is A Major Milestone
Today marks my 6 year anniversary of my cornea transplant!.
Sadly not everything is going well as my keratoconus is returning.
Thankfully I caught it rather quickly and recently had CXL done on the effected eye. It’s too soon to tell how effective it will be but hopefully it will extend the life of the cornea graft avoiding another cornea transplant.
While not the best of news it could have been worse. Hopefully things will work out and will be quite some time before i need another transplant.
My First Post Crosslinking Milestone! A Different Milestone Coming Soon!
Today marks the first week since my crosslinking surgery.
It also means that my prednisolone eye drops, and antibiotic eye drops changed from four times a day to three times a day. Though the continuation of the antibiotic drops was only due to healing being slower than anticipated. I expect good news this time around as everything feels like its normal now.
Friday, I have another checkup to see how the healing is going and is also the Six Year Anniversary of my Cornea Transplant surgery!
First Post Crosslinking Checkup Good But Could Have Been Better
Had the checkup appointment to check how I was healing.
While I am mostly healed I still have a small area that hasn’t healed yet. As a result I have to have a second check up in a week and my antibiotic eye drops extended a week.
While the results could have been better it is still progress in the right direction just slower than anticipated. It will be quite some time to judge the results of the crosslinking.
Today Was The Day Of My Corneal Cross Linking Surgery!
Today I had my Cornal Collagen Cross Linking Surgery also known as CXL.
It Went pretty smoothly though my light sensitivity made it extremely difficult to tolerate the light they needed to use to scrap off the uppermost layer of my cornea. This is done so that the drops they use for the crosslinking can penetrate my eye better as without doing it we would have to be doing this for much longer. Plus the US only authorized the Epi off version of this treatment .
Hopefully this will prevent the keratoconus that’s returning on my transplant eye from progressing thus preventing a need of another transplant.
It’s That Time Of The Year Again!
Yes It’s that time of the year again! I have my yearly thank you Christmas Card ready to go for my donor family. Without their generous donation I would be effectively blind in my left eye. It’s thanks to the generosity of grieving family’s with the strength to make some good out of a terrible situation where other people get to have a second chance at life or in my case restore a good level of vision.
And kerataconus is returning with a vengeance
Had my semi annual check up on the state of my eyes.
Unfortunately it was discovered that my left eye my transplant eye is having its kerataconus come back and I will be wanting to get cxl done to preserve what’s left.
Thanks for keeping a close eye on things I was able to get the issue detected before things got out of hand and made another transplant necessary.
The cxl procedure is set for January 10th 2023
Today Is Another Milestone!
As of today I have reached the 6 year mark of my official diagnosis of Keratoconus. 7/11/2016 was the day that I went to Wolfe Eye Clinic after being referred to them by Miller’s Family Eye Care due to their suspicion of me having Keratoconus.
Still don’t quite get how I managed to let things go undetected for so long. With how my dominant eye was doing ok in the morning but crap by evening that the doctors wouldn’t be able to find anything wrong.
Always take changes in your vision serious and do your daily eye exam you might be surprised to find an improvement in vision. You could even discover your developing diabetes enough in advance before any noticeable symptoms show up, the eye is the first thing that can be effected by diabetes.
Also if your doctor isn’t checking for Keratoconus if your prescription is changing frequently or you are prepping for LASIK i’d advise you to find someone else
Today Marks Yet Another Milestone!
Six years ago was the day that I had my appointment with Millers Family Eye Care and got advised that I had Keratoconus.
They referred me to Wolfe Eye Clinic which ultimately confirmed the diagnosis and that my left eye was bad enough to need a cornea transplant.
It still surprises me that I could have let it go for so long and that my right eye was able to take over so well. I thought that nobody would take it seriously given that at the time I would have decent vision in the morning but crap in the evening I thought they wouldn’t be able to find the problem.
This Year’s Full Eye Exam Went Well!
So I had my yearly Full Eye Exam today! Everything is going smoothly no signs of any issues and my scleral prescription is stable!!!
Kinda Expected this really with how things were going but it’s nice to have that confirmation that things are going well. I don’t even need to get a new set of sclerals.
Hoping this trend continues because the thing about keratoconus is that it can go dormant whenever it chooses to and then spontaneously starts progressing but so far things are going good for me!